I Am Not a Syndrome My Name is Simon edition by Sheryl Crosier Andy Knef Health Fitness Dieting eBooks
Download As PDF : I Am Not a Syndrome My Name is Simon edition by Sheryl Crosier Andy Knef Health Fitness Dieting eBooks 
Simon Dominic Crosier was born on September 7, 2010, in St. Louis, Missouri. He was diagnosed with Trisomy 18, and lived for three memorable months before passing away in December 2010. Despite his disabilities, Simon had a huge impact on all who came into contact with him. The book is about Simon’s short and meaningful life, his family and his wonderful caregivers. But more importantly, this story documents the family’s battle to advocate for their precious son against a sometimes difficult and indifferent medical community.
The Crosier family had to overcome challenges put in their way by the medical community and even extended family members who never valued Simon’s fragile existence the way they did. Author Sheryl Crosier's hope is that this story will help motivate health-care professionals and anyone else that reads this account. The lives of children, regardless of their diagnosis, possess inherent dignity and value, and they deserve the best care our advanced country has to offer.
All Star Press - Books that Change Lives - is honored to publish the e-book version of "I Am Not a Syndrome - My Name is Simon." It is a truly inspirational and moving story that we believe will touch many lives.
"I longed to tell Simon’s story of hope, faith, love and the peace which God granted me," explained Sheryl. "I want to help one understand the battles a family goes through and what a blessing life is no matter how short. It is evident that Trisomy 18 is a diagnosis, not a prognosis and a family’s love does not count chromosomes. Ultimately, God is our Maker and he knows our number of days. I write this book to demonstrate that our children are not a label and are not defects! They have a name and identity. They are children of God."
"There is so much more to this story than reading of a little boy’s journey. It is learning about the legacy for which he was here. Simon will live on in the hearts of many and I feel he truly has a place in mine. I don’t see Simon’s life as a tragedy but as a beautiful blessing. God knew what he was doing when he helped to choose Simon’s parents, for they are the ones who will bring his mission to its full potential."
Pat Jonas, President and Co-founder
Australian Rare Chromo Awareness Network (ARCAN)
A portion of all proceeds from "I Am Not a Syndrome - My Name is Simon" will benefit SOFT, Support Organization for Trisomy 18, 13 and Related Disorders.
I Am Not a Syndrome My Name is Simon edition by Sheryl Crosier Andy Knef Health Fitness Dieting eBooks
After reading this book I felt like I knew Simon and his family. I must have gone through 2 boxes of Kleenex reading Simons' story - and it was worth every tear I shed. I have battled some serious health crisis myself but none that compare to Simon. I have not complained since reading his story. We each have our own story that is written through the days of our lives. Simons' story may seem short but it did not end when his days on Earth did. He continues touching and changing lives. I am profoundly greatful Simon's family chose to share him with the world through this heartbreakingly raw and honest account of Simon. I never met Simon but I came to know him through this book. It is a life that will touch you and you will never forget that a little boy named Simon was once here.Product details
|
Tags : I Am Not a Syndrome - My Name is Simon - Kindle edition by Sheryl Crosier, Andy Knef. Download it once and read it on your Kindle device, PC, phones or tablets. Use features like bookmarks, note taking and highlighting while reading I Am Not a Syndrome - My Name is Simon.,ebook,Sheryl Crosier, Andy Knef,I Am Not a Syndrome - My Name is Simon,All Star Press,HEALTH & FITNESS Diseases General,HEALTH & FITNESS Pregnancy & Childbirth
People also read other books :
- Coloring Books for Grownups Cat Whimsy Mandalas & Geometric Shapes Coloring Pages - Complex Art Therapy Coloring Pages for Adults (Volume 9) (9781519337726) Chiquita Publishing Books
- 30 Tips, Tricks & Tools to Save You Time with Social Media and Blogging eBook Ashley Coombe
- Beginning ASP.NET E-Commerce in C# From Novice to Professional Cristian Darie 9788184894684 Books
- Confronting Case Blue Briansk Front's Attempt To Derail The German Drive To The Caucasus, July 1942 (9781911096436) Igor' Sdvizhkov, Stuart Britton Books
- His Condition - edition by Lily Ryan, Imagination UnCovered. Literature & Fiction eBooks @ .
I Am Not a Syndrome My Name is Simon edition by Sheryl Crosier Andy Knef Health Fitness Dieting eBooks Reviews
Sheryl told her story in a way that depicted their family's love for Simon while at the same time capturing the challenges and the heartbreak families face when working with a child with special needs. Thank you Sheryl for having the courage to tell your story.
It has first and foremost given me a lot more information regarding the syndrome than what doctors actually tell families. I know because a friend is currently going through this with her beautiful baby boy.
Simon's family is a true inspiration. God entrusted him with the perfect family for him without any doubt.
Thank you Sheryl for sharing your son with me through the telling of his story. Although I never met him, I've been able to see the mission God sent him for fulfilled through the love and compassion you now have for other children going through what Simon lived through.
This book was honest and heart warming. The story of Simon's brief but beautiful life is a testament to the power of love. Sheryl and Scott were fearless advocates for their son, and continue to be for all families dealing with life limiting medical conditions. As the parent of a child with a rare chromosome disorder, I felt the pain, I experienced the anger and frustration with those who would try to limit their child. This book takes the reader through the depths and heights of both grief and undying hope.
Simon's story is bigger than Simon. Through his family's lives, awareness is being raised for other children with trisomy 18, 13 and other genetic conditions. The medical community is being inspired to reevaluate their priorities for care for these little ones. Transparency in care planning, including in end of life care and DNR discussions, has been thrust to the forefront of the medical and legal establishment. What a great legacy this young infant has left behind. His name was Simon.
I grew up in the same hometown as Simon's dad; I went to high school with his aunt Staci and babysat her kids for years. I remember reading Staci's Facebook page and wondering who this little Simon was and why we were all praying so feverishly for him. I messaged her and when I heard the story about this little man...I am getting goosebumps on my legs just thinking about it! Mommy's account of Simon's short life is so wonderful! Her desire to make people realize he was more than just a statistic was so touching; as a medical professional I catch myself talking about the CA or MI patient in room whatever. It took reading this book to remind myself that EVERY patient is a PERSON and not just the disease they happen to be afflicted with. A Must-Read for anyone who is in a battle for a loved one's life!
I never thought I would be so captivated by the story of somebody else's sick child. Sure, there are sick children around, but why would I bother reading about them? Boy, was I wrong.
What an amazing love story. Simon stole my heart. Read the book, you will fall in love with him, too.
This is a story of an exceptional, beautiful little boy, of his amazing family, of his heroic mother, who fought for his fundamental right to medical treatment.
And what an eye opener! I was terrified to learn how widespread eugenic mentality is in our health care system.
So, again, read the book. You will never regret getting to know little but great Simon Dominic Crosier.
This is an important story, not only because Sheryl and her family emphasize the value of life, but because she describes the many encounters they had with the medical community. Those of us who have had to rely on the medical community while caring for our children, especially those who have rare diseases, know how important it is to acknowledge those who have been helpful to us, The support of caring individuals is invaluable at such a time. And we also know that it is important to confront those who are negative so they might learn and be more aware of the needs of the families they encounter. I have already recommended this book to others, and I will continue to do so.
I strongly believe your/his book should be required reading for all doctors and nurses. I am angry any doctor would say that a child is "incompatible with life!" It also angers me that they seemed to want to hurry his demise instead of providing him with the best care possible so he could live as long as God wanted him to. Thank you so much for fighting for him like you did. Simon was a precious child from what I've read. And I know God is using him to help other children like Simon and their families! As someone with severe cerebral palsy, my parents had to fight for my life and education. Every child is precious and deserved LIFE! I can't wait to meet Simon in Heaven. Thank you again for sharing him with us. God bless you!
After reading this book I felt like I knew Simon and his family. I must have gone through 2 boxes of Kleenex reading Simons' story - and it was worth every tear I shed. I have battled some serious health crisis myself but none that compare to Simon. I have not complained since reading his story. We each have our own story that is written through the days of our lives. Simons' story may seem short but it did not end when his days on Earth did. He continues touching and changing lives. I am profoundly greatful Simon's family chose to share him with the world through this heartbreakingly raw and honest account of Simon. I never met Simon but I came to know him through this book. It is a life that will touch you and you will never forget that a little boy named Simon was once here.
0 Response to "[YSO]≫ Libro Gratis I Am Not a Syndrome My Name is Simon edition by Sheryl Crosier Andy Knef Health Fitness Dieting eBooks"
Post a Comment